Tag: dementia

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Boys Books

Dad loves Boys Books. He collected series such as Henty, Whitman, Kelland, Langworth, Saalfield, Maitland and more. The shelves of these adventure stories covered an entire wall, floor-to-ceiling in his den library. It’s wonderful to know that he read every book in his collection more than once. He enjoyed The Airplane Boys, Mark Tidd, The Lion, and The Boy Knight, The West Point and Annapolis series, The Boy Allies. Dad also read young adult selections by Zane Grey, Roy Rogers, and Gene Autry, and the Camp Fire and Trail by  Leslie. Eventually, he sold most of his collection as his Lewy Body Dementia made it impossible to read, comprehend and enjoy the stories.

To help Dad continue to enjoy his hobby of reading, I shared audio books with him. It never worked. Then I read to him and sometimes he enjoyed it for a few minutes but would usually fall asleep. Coffee table books with large images still seem to hold his interest. Yet they are a far cry from his afternoons sitting under the apple tree with a good book in front of his childhood home. I know because I am a reader too. There is nothing better than being immersed in a good book.

Recently, we rediscovered Disney movies instead of books. Adventure stories with people and animals are Dad’s favorites. Homeward Bound, Call of the Wild, and White Fang have been engaging for him. He is interested enough to watch an entire movie similar to being captured by a good book. Next I am going to try the Huck Finn movie to see if he likes it. 

Today as the movie started and the Disney Castle scrolled onto the screen, Dad said, “That could be their church.”  We chuckled at the idea and agreed we knew a lot of folks who loved everything Disney. Speaking of Disney, I only remember Dad being with me one time at Disneyland. As we entered the park, he asked, “What kind of a mickey mouse place is this?”

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Sit Here and Go With Him

1920s Victrola

Yesterday Dad was listening to songs by Marty Robbins on a tablet I keep in his room. He shared with me how much he was enjoying the music by saying, “I can sit here and go with him.” Marty and his ballads have been favorites in Dad’s music collection since I was a child. Dad was telling me that the songs were familiar, that he was listening to the lyrics, and that he was imagining himself in the musical stories. It was great to hear this. Dad’s appreciation of music, recognition of artists, and ability to play records by himself has changed dramatically in the past nine months. This isn’t the first time Lewy Body Dementia has affected our music experience. Read the post “Just a Lil Bit Country.”

Dad no longer requests artists by name even if I give him a choice of just two. He rather quickly lost his ability to operate his favorite modern turntable. He began to think he had placed a record to play when there was nothing on the machine. When he did get something playing, he worried that playing the records would lead to him losing them or breaking them and he would turn it off again. A reasonable understanding might be that this was his way of expressing his own awareness about his loss of these abilities. We never know for certain. I decided to make a change when I walked in Dad’s room, and he was trying to put a cardboard album cover on his foot like a shoe and stand up in it. I gradually removed a few albums at a time. Dad didn’t notice they were missing. Of course, the records and album covers were all mismatched. Eventually, I removed the turntable completely. I replaced it with a tablet where I can load a variety of music apps. I particularly like the voice activated ones. Dad likes the ones with lyrics that scroll while the song is playing. At first he read and sang along. Now he just looks at the words and smiles. He can’t keep up  any longer but likes that they are there. 

The artist that remained the longest was Alan Jackson.  Dad recognized his Precious Memories Collection by the image of the church on the album art. Each time I selected this music, Dad would tell me how he was there at the church with Alan when he recorded the songs. This delusion has also since faded. His music experiences are now only in the moment.

On the fourth of July, we played John Philip Sousa’s Stars and Stripes Forever on Dad’s 1920s Victrola Phonograph. Dad waved his arm as if conducting the orchestra through the entire recording. Last week we played Gene Autry. While singing along with “Home on the Range,” Dad swayed left and right, closed his eyes, and sang the chorus. Whether Dad is riding out on the range with Gene, at church with Alan, or on the streets of Laredo with Marty, he is happy in these moments. Music is no longer an independent past time for Dad. It’s okay.  We have been listening to these songs together for as long as we both can remember.  Wherever he goes in his mind, “I can sit here and go with him.”

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My People

Holding a picture of an ancestor near a family tree.

Dad has always had an interest in the family tree. Fortunately, a not so distant relative in Holland did extensive research and shared it with the entire family. We love knowing that just two generations ago, our paternal family immigrated to the northeastern United States. Stories of their business endeavors are consistent with the entrepreneurial spirit of the family. A great-great grandfather was a merchant who sailed his ship through the English channel trading and selling goods. With records going back to the 1600s, there is even a roster from the Queen’s court that includes our unusual family name. There has always been an idea that the family is primarily from the Netherlands.

We recently tested Dad’s DNA. And yes, 28 percent of his ancestors are from Germanic Europe and 31 percent are from England and Northwestern Europe. This includes Belgium and the Netherlands as well as the opposite side of the English Channel all the way to Wales, The Isle of Man, and south to Guernsey and Jersey Islands.

We knew less about Dad’s maternal family. Interestingly, we learned a greater 36 percent of our ancestors are from Ireland, specifically the regions of Kerry and Cork. And, if we look back far enough, variations of the family name date to medieval times and the Knights of the Templar. These ancestors immigrated to Canada before arriving in the northeastern United States.

My grandfather met my grandmother on a rainy day. She was walking or waiting for a bus, and he offered her a ride. Meanwhile, one of grandfather’s friends (or a cousin) had been hounding him about introducing him to a certain lady. When it finally happened a short time later, it turns out it was the same gal he had given a ride, my grandmother.

Although Dad’s parents passed away in the 1980s, he doesn’t remember that they are gone. Nearly every day for more than a year now, he asks me, “Where are my people?” He then shares some concern about their wellbeing or relays a story about a time when they were together. He sometimes asks if he can visit the family home. Today he told me in his own way, “My mother and my father always made everything nice for me there and worked half the night to do it.” I know this because I am blessed to be part of the same family. Over the years I witnessed how my grandparents and my Dad lived, and role modeled a loving close-knit family with an exemplary work ethic to provide and care for loved ones.

For quite a while now, Dad doesn’t remember most of his people. His younger brother, my younger sister and my mother have also passed on, just to name a few. When Dad asks about his people, I show him pictures of children, grandchildren, nieces, and nephews. We practice their names and count how many family members are in the generations of the future. I remind Dad, that each and every one of our people are a little bit of his mother and father, and a lot of him.

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Lollipop Lollipop

Dad loves candy. At Christmas time each year, instead of visions of sugar plums, I can still see Dad passing around his coveted box of chocolate covered cherries hoping each person takes only one. In the fall he found the candy corn. In February, he brought home Valentine boxes for every one of his gals and then helped us eat the chocolates. There were three of us. Anything in the candy dish disappeared quickly, even the hard butterscotch. Tootsie Rolls were always around. He loved fudge too, and would eat rope licorice along with all the kids in the family. My favorite vision is Dad in his blue jeans, a crisp white t-shirt with his sleeves rolled up, holding an iconic brightly colored box of Dots with the flaps open. He is chewing away while rolling the next old-school gummy around in his other hand. Dad would enjoy any and all of these sweet treats all the time if I kept them around. With his dementia, he would probably enjoy them all in one sitting. Sugar seems to spin up the delusions associated with Lewy Body Dementia, so candy is more occasional now.

Dad’s favorite candy lately is peanut butter cups. We are renovating his home and almost daily visit the local home improvement store where candy is displayed next to the checkout stands. Dad reaches for those peanut butter cups every time. He can’t get enough of them. Not every day, but when we do buy them, Dad nibbles the candy to make it last as long as possible. Which is fine except when the weather is warm. Its a bit more challenging when the chocolate is melting around his fingers. Candy seems to be a family trait inherited by my son and grandchildren. With the children, it starts with the peanut butter cups, then gummy bears, sour worms, and more. They definitely have candy in common with their Gramps.

A few days ago, while I was in a salon appointment, Dad waited patiently in a chair nearby. I gave him a bottle of water, and one of the salon employees gave him a lollipop from the candy dish. After my service was completed, I noticed to my surprise, Dad drank nearly the entire bottle of water. Interestingly, the small amount of water that remained in the bottle was pink. As he removed the lid and took a sip, I saw a white paper stick bobbing inside the water bottle. My first concern was that he might choke. Without over-reacting, I asked Dad if he put his lollipop in his water bottle. With a sheepish smile, he said, “Yes, and it tastes gooood.”

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Saturday Sandwiches

Dagwood Tower Sandwich On Glass Plate

Dad’s favorite foods are picnic foods and sub sandwiches. The menu includes macaroni and potato salad, corn on the cob, hotdogs, baked beans, chips and cookies. Every Friday night I make him beanie weenies, we have corn once a week and a variety of salads with lunch. About once a month we go out to lunch for subs. Interestingly, he no longer enjoys chili, hot peppers or anything spicy. I can remember walking into the living room when I was about eight years of age to see him sitting on the couch snacking on jalapeno peppers right out of the jar. As I sided up next to him, he said, These peppers are so hot! I asked him, Why don’t you stop eating them? Dad replied, They don’t get hot until I stop eating them. They are so hot I can’t stop.

A jar of jalapeno peppers was always on the table for Saturday lunch. On Saturday Mom would bring out the leftovers from the week and we would eat whatever was on the table. If there wasn’t quite enough Mom would cook up a little bacon. Sometimes Dad picked seasonal fresh pear tomatoes he grew in the side yard. I brought radishes (red and white), carrots and lettuce from my corner garden. I’m not sure exactly how it started, but I can hear my sister saying That’s gross, as Dad sliced hardboiled eggs and radishes and stacked them on top of white Wonder bread covered with barbecue beans. I placed a few slices of bacon on my bread and peanut butter. Dad winked and we just kept going. We started to combine anything we liked to eat onto our sandwiches. Sometimes we toasted the bread or added another slice of bread in the middle. I don’t know where we put all the food, but we ate everything on our plates. The messier the better.

We came up with some traditional combinations like creamy Limberger cheese and onions and added the liver too. Our bologna and mustard layers were usually topped off with potato chips. If there were leftover Bisquick biscuits, we used them instead of bread. There are many recipes that taste just as good cold as hot. Cold split pea soup with ham makes a great spread. Cold SOS is great with lettuce tomatoes and radishes. Who needs mayo when you have gravy? Grapes and onions stick to cream cheese. Macaroni, potato and egg salad are no brainers with sliced hot dogs. There was usually some canned Spam or corned beef and occasionally sardines. If Mom was making pickles, we added the pre-soaked Persian cucumber slices or the Butter Pickles. The more Mom and Sis fussed the more creative we were. Before we took our first bite, we carefully smashed the layers from the top down hoping to get a bite tasting of every flavor at once. We had so much fun.

Dad’s Dagwood inspired Saturday Sandwiches became a tradition. We eat much healthier these days, but when we have BLTs I always make them with peanut butter and Dad makes them with peanut butter and mayo. Dad is almost always willing to eat up leftovers so food doesn’t go to waste. Yesterday during his picnic food lunch he crumbled his chips onto his macaroni salad. I’m grateful he is a good eater. Tomorrow is Saturday. I think we will get out the Borgasmord.